Očekivana podrška porodice i prijatelja roditeljima dece sa smetnjama u razvoju

Abstract

Uvod: Neformalna i formalna podrška roditeljima dece sa smetnjama u razvoju ima višestruk uticaj na porodično funkcionisanje i zadovoljstvo životom članova porodice. Cilj: Cilj istraživanja je utvrđivanje u kojoj meri roditelji dece sa smetnjama u razvoju očekuju podršku od porodice i prijatelja. Metod: Uzorak u istraživanju činilo je 65 roditelja dece sa smetnjama u razvoju, većina su bile majke (f = 62, P = 95.4%). Ispitivanje očekivane podrške članova porodice i prijatelja izvršeno je korišćenjem skale Socijalna podrška – ponašanje (The Social Support Behaviors – SS-B; Vaux et al., 1987). Rezultati: Primenom deskriptivne statistike utvrđeno je da roditelji manje računaju na podršku prijatelja, podrška porodice je u prvom planu. Roditelji dece sa višestrukom ometenošću, nezaposleni i roditelji koji žive u seoskoj sredini imaju niža očekivanja od ostalih grupa da će ih podržati porodica i prijatelji. Najniža očekivanja imaju u segmentu finansijske i fizičke podrške. Zaključak: Na svih pet dimenzija podrške (emotivna, socijalna, fizička, finansijska isavetodavna) od članova šire porodice očekuje se većistepen pomoći. Analiza pojedinačnih ajtema u okviru navedenih dimenzija ukazuje na postojanje različitog stepena očekivanja u okviru iste dimenzije, što je posledica specifičnosti zahteva.

Introduction. Informal and formal support to parents of children with disabilities affects family functioning and life satisfaction of family members in many ways. Objective. The aim of this research was to determine the extent to which parents of children with disabilities expected support of their family and friends. Methods. The sample included 65 parents of children with disabilities, most of whom were mothers (N = 62, P = 95.4%). The Social Support Behaviors – SS-B scale (Vaux et al., 1987) was used to examine the expected support of family and friends. Results. Descriptive statistics showed that parents counted on family members’ support much more than on their friends’ support. Parents of children with multiple disabilities, unemployed parents, and those who lived in rural areas had lower expectations regarding family and friends’ support compared to other groups. Their expectations were the lowest in the segments of financial and physical support. Conclusion. Extended family members were expected to provide greater help in all five support dimensions (emotional, social, physical, financial, and counselling). The analysis of individual items within these dimensions indicates the existence of various expectation levels within the same dimension, which isthe result ofspecific requirements