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System support for families of children with disabilities with emphasis on families of deaf children

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2016
Untitled38.pdf (3.100Mb)
Authors
Karić, Jasmina
Dragojević, Nada
Contributors
Nikolić, Snežana
Nikić, Radmila
Ilanković, Vera
Conference object (Published version)
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Abstract
Birth of a child represents a change in family structure, a change that requires an adoption of new roles, as it brings new incentives to family dynamics. Birth of a child with disabilities, in fact a comprehension that a child has developmental disabilities, represents a stressor of different quality, placing a heavy burden on the family for a long period of time. As in other, different stress situations, pain and suffering, brought by the knowledge of child’s disability, could present a trigger for the occurrence of different reactions and feelings on different levels. Shock, non-recognition of a disability, ambivalence, resentment, discouragement, chronic tension, feelings of guilt, feelings of isolation, defeat, depression, feeling of helplessness, blaming others, loss of self-esteem are just some of the possible reactions. In addition, parents are faced with an ongoing insecurity and greater anxiety in raising their child. Parents are being rewarded less by their childr...en’s achievements than parents of healthy children, there is a decline in their expectations. Also, fear of labelling the family as “different” may appear, as well as problems with the acceptance of moving a child to a special category. Finally, lack of criteria for predicting the future of the child presents a particular source of suffering. Establishing good cooperation with the family, in order to establish a system of family support, requires many individual contacts, knowledge of its functioning, a lot of time and patience, as well as linking with experts in various fields. Early intervention is an integral part of the system of support for families of children with disabilities. We started from the fact that in helping children it is important to work not only with the child, but also with parents and that every form of work with parents is good, if it contributes to the child’s general development. Support for families of deaf and hard of hearing children begins soon after the baby is diagnosed with hearing loss. Early intervention, carried out through the participation of children and parents in the rehabilitation treatments, should help parents understand what the hearing loss brings, as well as help them gain confidence in parenting. It should also help parents realize the strengths and needs of their child and to enable a child to acquire necessary language skills that are essential in order for a child to become an equal member of the society.

Keywords:
family / children with disabilities / deaf and hard of hearing children
Source:
Thematic Collection of International Importance- Early Intervention in Special Education and Rehabilitation“, Beograd, Srbija, 2016., 2016, 519-532
Publisher:
  • University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia / Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju

ISBN: 978-86-6203-086-3

[ Google Scholar ]
Handle
https://hdl.handle.net/21.15107/rcub_rfasper_4194
URI
http://rfasper.fasper.bg.ac.rs/handle/123456789/4194
Collections
  • Radovi istraživača / Researcher's publications
Institution/Community
rFASPER
TY  - CONF
AU  - Karić, Jasmina
AU  - Dragojević, Nada
PY  - 2016
UR  - http://rfasper.fasper.bg.ac.rs/handle/123456789/4194
AB  - Birth of a child represents a change in family structure, a change that requires an
adoption of new roles, as it brings new incentives to family dynamics. Birth of a child
with disabilities, in fact a comprehension that a child has developmental disabilities,
represents a stressor of different quality, placing a heavy burden on the family for a
long period of time. As in other, different stress situations, pain and suffering, brought
by the knowledge of child’s disability, could present a trigger for the occurrence of
different reactions and feelings on different levels. Shock, non-recognition of a disability,
ambivalence, resentment, discouragement, chronic tension, feelings of guilt, feelings of
isolation, defeat, depression, feeling of helplessness, blaming others, loss of self-esteem
are just some of the possible reactions. In addition, parents are faced with an ongoing
insecurity and greater anxiety in raising their child. Parents are being rewarded less
by their children’s achievements than parents of healthy children, there is a decline in
their expectations. Also, fear of labelling the family as “different” may appear, as well
as problems with the acceptance of moving a child to a special category. Finally, lack of
criteria for predicting the future of the child presents a particular source of suffering.
Establishing good cooperation with the family, in order to establish a system of family
support, requires many individual contacts, knowledge of its functioning, a lot of time
and patience, as well as linking with experts in various fields. Early intervention is an
integral part of the system of support for families of children with disabilities. We started
from the fact that in helping children it is important to work not only with the child, but
also with parents and that every form of work with parents is good, if it contributes to
the child’s general development.
Support for families of deaf and hard of hearing children begins soon after the baby
is diagnosed with hearing loss. Early intervention, carried out through the participation
of children and parents in the rehabilitation treatments, should help parents understand
what the hearing loss brings, as well as help them gain confidence in parenting. It should
also help parents realize the strengths and needs of their child and to enable a child to
acquire necessary language skills that are essential in order for a child to become an
equal member of the society.
PB  - University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia / Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju
C3  - Thematic Collection of International Importance- Early Intervention in Special Education and Rehabilitation“, Beograd, Srbija, 2016.
T1  - System support for families of children with disabilities with emphasis on families of deaf children
EP  - 532
SP  - 519
UR  - https://hdl.handle.net/21.15107/rcub_rfasper_4194
ER  - 
@conference{
author = "Karić, Jasmina and Dragojević, Nada",
year = "2016",
abstract = "Birth of a child represents a change in family structure, a change that requires an
adoption of new roles, as it brings new incentives to family dynamics. Birth of a child
with disabilities, in fact a comprehension that a child has developmental disabilities,
represents a stressor of different quality, placing a heavy burden on the family for a
long period of time. As in other, different stress situations, pain and suffering, brought
by the knowledge of child’s disability, could present a trigger for the occurrence of
different reactions and feelings on different levels. Shock, non-recognition of a disability,
ambivalence, resentment, discouragement, chronic tension, feelings of guilt, feelings of
isolation, defeat, depression, feeling of helplessness, blaming others, loss of self-esteem
are just some of the possible reactions. In addition, parents are faced with an ongoing
insecurity and greater anxiety in raising their child. Parents are being rewarded less
by their children’s achievements than parents of healthy children, there is a decline in
their expectations. Also, fear of labelling the family as “different” may appear, as well
as problems with the acceptance of moving a child to a special category. Finally, lack of
criteria for predicting the future of the child presents a particular source of suffering.
Establishing good cooperation with the family, in order to establish a system of family
support, requires many individual contacts, knowledge of its functioning, a lot of time
and patience, as well as linking with experts in various fields. Early intervention is an
integral part of the system of support for families of children with disabilities. We started
from the fact that in helping children it is important to work not only with the child, but
also with parents and that every form of work with parents is good, if it contributes to
the child’s general development.
Support for families of deaf and hard of hearing children begins soon after the baby
is diagnosed with hearing loss. Early intervention, carried out through the participation
of children and parents in the rehabilitation treatments, should help parents understand
what the hearing loss brings, as well as help them gain confidence in parenting. It should
also help parents realize the strengths and needs of their child and to enable a child to
acquire necessary language skills that are essential in order for a child to become an
equal member of the society.",
publisher = "University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia / Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju",
journal = "Thematic Collection of International Importance- Early Intervention in Special Education and Rehabilitation“, Beograd, Srbija, 2016.",
title = "System support for families of children with disabilities with emphasis on families of deaf children",
pages = "532-519",
url = "https://hdl.handle.net/21.15107/rcub_rfasper_4194"
}
Karić, J.,& Dragojević, N.. (2016). System support for families of children with disabilities with emphasis on families of deaf children. in Thematic Collection of International Importance- Early Intervention in Special Education and Rehabilitation“, Beograd, Srbija, 2016.
University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia / Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju., 519-532.
https://hdl.handle.net/21.15107/rcub_rfasper_4194
Karić J, Dragojević N. System support for families of children with disabilities with emphasis on families of deaf children. in Thematic Collection of International Importance- Early Intervention in Special Education and Rehabilitation“, Beograd, Srbija, 2016.. 2016;:519-532.
https://hdl.handle.net/21.15107/rcub_rfasper_4194 .
Karić, Jasmina, Dragojević, Nada, "System support for families of children with disabilities with emphasis on families of deaf children" in Thematic Collection of International Importance- Early Intervention in Special Education and Rehabilitation“, Beograd, Srbija, 2016. (2016):519-532,
https://hdl.handle.net/21.15107/rcub_rfasper_4194 .

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