Children with developmental disabilities, including cerebral palsy (CP), often
experience restriction in community participation. The previous empirical
and theoretical consideration of community participation of children with
CP did not take into account the family quality of life (FQOL) as a potential
factor that could have affected the participation of these children. The aim of
this study was to examine the association between community participation
of children with CP and FQOL and draw comparisons with their peers with
typical development (TD). The sample of this descriptive, cross-sectional
and comparative research consisted of 109 families with children with CP
and 133 families with children with TD, both genders, aged between seven
and 18 years. The Participation and Environment Measure for Children and
Youth (PEM-CY) and The Beach Center Family Quality of Life Scale (Beach
FQOL Scale) were used. The Spearman’s rank-order correlation coefficients
were calculated t...o test the strength of a relationship between two sets of
data for each group separately. The results indicate interrelation between
the subjective dimension of community participation as expressed through
parental desire for change, and both parenting aspect of family life (ρ=-.24)
and social and emotional support within the family emotional well-being
(ρ=-.20) in the group of children with CP. However, a greater number of
statistically significant correlations is confirmed in the group of children
with TD. Comparing the distribution of results between the two groups, the
most noticeable is the absence of connection between FQOL and diversity
and frequency of community participation in the group of children with
CP, which is confirmed in the group of children with TD. The conclusion underlines that the reflection of changes that affect family life after the birth
of a child with CP can be seen in various aspects of FQOL.
Keywords:
community participation / family quality of life / cerebral palsy / family life
Source:
Early Childhood Intervention: For Meeting Sustainable Development Goals of the New Millennium: proceedings, Eurlyaid Conference 2017, 2017, 251-259
Publisher:
University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia /
Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju
TY - CONF
AU - Milićević, Milena
AU - Nedović, Goran
AU - Bogdanović-Šutković, Violeta
PY - 2017
UR - http://rfasper.fasper.bg.ac.rs/handle/123456789/2749
AB - Children with developmental disabilities, including cerebral palsy (CP), often
experience restriction in community participation. The previous empirical
and theoretical consideration of community participation of children with
CP did not take into account the family quality of life (FQOL) as a potential
factor that could have affected the participation of these children. The aim of
this study was to examine the association between community participation
of children with CP and FQOL and draw comparisons with their peers with
typical development (TD). The sample of this descriptive, cross-sectional
and comparative research consisted of 109 families with children with CP
and 133 families with children with TD, both genders, aged between seven
and 18 years. The Participation and Environment Measure for Children and
Youth (PEM-CY) and The Beach Center Family Quality of Life Scale (Beach
FQOL Scale) were used. The Spearman’s rank-order correlation coefficients
were calculated to test the strength of a relationship between two sets of
data for each group separately. The results indicate interrelation between
the subjective dimension of community participation as expressed through
parental desire for change, and both parenting aspect of family life (ρ=-.24)
and social and emotional support within the family emotional well-being
(ρ=-.20) in the group of children with CP. However, a greater number of
statistically significant correlations is confirmed in the group of children
with TD. Comparing the distribution of results between the two groups, the
most noticeable is the absence of connection between FQOL and diversity
and frequency of community participation in the group of children with
CP, which is confirmed in the group of children with TD. The conclusion underlines that the reflection of changes that affect family life after the birth
of a child with CP can be seen in various aspects of FQOL.
PB - University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia /
Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju
C3 - Early Childhood Intervention: For Meeting Sustainable Development Goals of the New Millennium: proceedings, Eurlyaid Conference 2017
C3 - Proceedings- Eurlyaid
Conference 2017 „ Early Childhood Intervention:
For meeting sustainable
development goals of the
new millennium “, Beograd, Srbija, 06–08. 10.2017.
T1 - Community participation and family quality of life – comparative study of children with cerebral palsy and children with typical development
EP - 259
SP - 251
UR - https://hdl.handle.net/21.15107/rcub_rfasper_2749
ER -
@conference{
author = "Milićević, Milena and Nedović, Goran and Bogdanović-Šutković, Violeta",
year = "2017",
abstract = "Children with developmental disabilities, including cerebral palsy (CP), often
experience restriction in community participation. The previous empirical
and theoretical consideration of community participation of children with
CP did not take into account the family quality of life (FQOL) as a potential
factor that could have affected the participation of these children. The aim of
this study was to examine the association between community participation
of children with CP and FQOL and draw comparisons with their peers with
typical development (TD). The sample of this descriptive, cross-sectional
and comparative research consisted of 109 families with children with CP
and 133 families with children with TD, both genders, aged between seven
and 18 years. The Participation and Environment Measure for Children and
Youth (PEM-CY) and The Beach Center Family Quality of Life Scale (Beach
FQOL Scale) were used. The Spearman’s rank-order correlation coefficients
were calculated to test the strength of a relationship between two sets of
data for each group separately. The results indicate interrelation between
the subjective dimension of community participation as expressed through
parental desire for change, and both parenting aspect of family life (ρ=-.24)
and social and emotional support within the family emotional well-being
(ρ=-.20) in the group of children with CP. However, a greater number of
statistically significant correlations is confirmed in the group of children
with TD. Comparing the distribution of results between the two groups, the
most noticeable is the absence of connection between FQOL and diversity
and frequency of community participation in the group of children with
CP, which is confirmed in the group of children with TD. The conclusion underlines that the reflection of changes that affect family life after the birth
of a child with CP can be seen in various aspects of FQOL.",
publisher = "University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia /
Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju",
journal = "Early Childhood Intervention: For Meeting Sustainable Development Goals of the New Millennium: proceedings, Eurlyaid Conference 2017, Proceedings- Eurlyaid
Conference 2017 „ Early Childhood Intervention:
For meeting sustainable
development goals of the
new millennium “, Beograd, Srbija, 06–08. 10.2017.",
title = "Community participation and family quality of life – comparative study of children with cerebral palsy and children with typical development",
pages = "259-251",
url = "https://hdl.handle.net/21.15107/rcub_rfasper_2749"
}
Milićević, M., Nedović, G.,& Bogdanović-Šutković, V.. (2017). Community participation and family quality of life – comparative study of children with cerebral palsy and children with typical development. in Early Childhood Intervention: For Meeting Sustainable Development Goals of the New Millennium: proceedings, Eurlyaid Conference 2017
University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia /
Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju., 251-259.
https://hdl.handle.net/21.15107/rcub_rfasper_2749
Milićević M, Nedović G, Bogdanović-Šutković V. Community participation and family quality of life – comparative study of children with cerebral palsy and children with typical development. in Early Childhood Intervention: For Meeting Sustainable Development Goals of the New Millennium: proceedings, Eurlyaid Conference 2017. 2017;:251-259.
https://hdl.handle.net/21.15107/rcub_rfasper_2749 .
Milićević, Milena, Nedović, Goran, Bogdanović-Šutković, Violeta, "Community participation and family quality of life – comparative study of children with cerebral palsy and children with typical development" in Early Childhood Intervention: For Meeting Sustainable Development Goals of the New Millennium: proceedings, Eurlyaid Conference 2017 (2017):251-259,
https://hdl.handle.net/21.15107/rcub_rfasper_2749 .
