Stigma and its association with health-related quality of life in adults with epilepsy | Elsevier Enhanced Reader
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Objective: To explore the presence of felt and enacted stigma in people with epilepsy (PWE), members of a self-governing epilepsy organization and to evaluate the influence of both types of stigma on healthrelated quality of life (HRQoL) in PWE. Methods: Participants were 55 PWE (age range: 18–53 years), members of a non-governmental organization (further ‘‘NGO”). The sociodemographic and epilepsy-related variables were collected through structured interviews designed for the purpose of the study. Felt stigma was assessed with the Epilepsy Stigma Scale (ESS) and enacted stigma with the Questionnaire for episodes of discrimination against PWE. Quality of Life in Epilepsy Inventory (QOLIE-31) (Serbian version) was used for the evaluation of HRQoL. Results: The mean ESS score was 33.93 ± 14.50. Felt stigma was significantly associated with the male gender and the number of antiepileptic drugs (AEDs). Participants’ mean score on the Questionnaire for episodes of discrimination was 2.80 ± 2....78. Enacted stigma was significantly correlated with male gender and number of AEDs, as well as with older age/longer duration of the disorder. Felt stigma scores were positively correlated with enacted stigma scores (p < 0.001), but only felt stigma scores were negatively related to QOLIE-31 overall score (p = 0.01). The combination of AEDs, seizure frequency, and felt stigma best explained the HRQoL in PWE (p < 0.001). Conclusion: Felt and enacted stigma are moderately related, but only felt stigma appears to be a significant predictor of the deteriorating HRQoL in this sample. Interventions targeting felt stigma should be considered a part of comprehensive epilepsy care as well as educating the wider community about epilepsy.
Ključne reči:
Epilepsy / Stigma / Health-related quality of lifeIzvor:
Epilepsy & Behavior, 135, -108874Izdavač:
- Elsevier [Commercial Publisher]
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https://reader.elsevier.com/reader/sd/pii/S1525505022003237?token=5D0FBDE6C3D43653AEE49DEB441C49D0E46C3FFAD8307F3A35E262CCAEB64D15C24BA4622C1A9699AD019811ADB10D67&originRegion=eu-west-1&originCreation=20220905065244http://rfasper.fasper.bg.ac.rs/handle/123456789/4748
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rFASPERTY - JOUR AU - Staša Lalatović AU - Maja Milovanović AU - Nadežda Krstić UR - https://reader.elsevier.com/reader/sd/pii/S1525505022003237?token=5D0FBDE6C3D43653AEE49DEB441C49D0E46C3FFAD8307F3A35E262CCAEB64D15C24BA4622C1A9699AD019811ADB10D67&originRegion=eu-west-1&originCreation=20220905065244 UR - http://rfasper.fasper.bg.ac.rs/handle/123456789/4748 AB - Objective: To explore the presence of felt and enacted stigma in people with epilepsy (PWE), members of a self-governing epilepsy organization and to evaluate the influence of both types of stigma on healthrelated quality of life (HRQoL) in PWE. Methods: Participants were 55 PWE (age range: 18–53 years), members of a non-governmental organization (further ‘‘NGO”). The sociodemographic and epilepsy-related variables were collected through structured interviews designed for the purpose of the study. Felt stigma was assessed with the Epilepsy Stigma Scale (ESS) and enacted stigma with the Questionnaire for episodes of discrimination against PWE. Quality of Life in Epilepsy Inventory (QOLIE-31) (Serbian version) was used for the evaluation of HRQoL. Results: The mean ESS score was 33.93 ± 14.50. Felt stigma was significantly associated with the male gender and the number of antiepileptic drugs (AEDs). Participants’ mean score on the Questionnaire for episodes of discrimination was 2.80 ± 2.78. Enacted stigma was significantly correlated with male gender and number of AEDs, as well as with older age/longer duration of the disorder. Felt stigma scores were positively correlated with enacted stigma scores (p < 0.001), but only felt stigma scores were negatively related to QOLIE-31 overall score (p = 0.01). The combination of AEDs, seizure frequency, and felt stigma best explained the HRQoL in PWE (p < 0.001). Conclusion: Felt and enacted stigma are moderately related, but only felt stigma appears to be a significant predictor of the deteriorating HRQoL in this sample. Interventions targeting felt stigma should be considered a part of comprehensive epilepsy care as well as educating the wider community about epilepsy. PB - Elsevier [Commercial Publisher] T2 - Epilepsy & Behavior T1 - Stigma and its association with health-related quality of life in adults with epilepsy | Elsevier Enhanced Reader EP - 108874 VL - 135 DO - https://doi.org/10.1016/j.yebeh.2022.108874 ER -
@article{ author = "Staša Lalatović and Maja Milovanović and Nadežda Krstić", abstract = "Objective: To explore the presence of felt and enacted stigma in people with epilepsy (PWE), members of a self-governing epilepsy organization and to evaluate the influence of both types of stigma on healthrelated quality of life (HRQoL) in PWE. Methods: Participants were 55 PWE (age range: 18–53 years), members of a non-governmental organization (further ‘‘NGO”). The sociodemographic and epilepsy-related variables were collected through structured interviews designed for the purpose of the study. Felt stigma was assessed with the Epilepsy Stigma Scale (ESS) and enacted stigma with the Questionnaire for episodes of discrimination against PWE. Quality of Life in Epilepsy Inventory (QOLIE-31) (Serbian version) was used for the evaluation of HRQoL. Results: The mean ESS score was 33.93 ± 14.50. Felt stigma was significantly associated with the male gender and the number of antiepileptic drugs (AEDs). Participants’ mean score on the Questionnaire for episodes of discrimination was 2.80 ± 2.78. Enacted stigma was significantly correlated with male gender and number of AEDs, as well as with older age/longer duration of the disorder. Felt stigma scores were positively correlated with enacted stigma scores (p < 0.001), but only felt stigma scores were negatively related to QOLIE-31 overall score (p = 0.01). The combination of AEDs, seizure frequency, and felt stigma best explained the HRQoL in PWE (p < 0.001). Conclusion: Felt and enacted stigma are moderately related, but only felt stigma appears to be a significant predictor of the deteriorating HRQoL in this sample. Interventions targeting felt stigma should be considered a part of comprehensive epilepsy care as well as educating the wider community about epilepsy.", publisher = "Elsevier [Commercial Publisher]", journal = "Epilepsy & Behavior", title = "Stigma and its association with health-related quality of life in adults with epilepsy | Elsevier Enhanced Reader", pages = "108874", volume = "135", doi = "https://doi.org/10.1016/j.yebeh.2022.108874" }
Staša Lalatović, Maja Milovanović,& Nadežda Krstić.Stigma and its association with health-related quality of life in adults with epilepsy | Elsevier Enhanced Reader. in Epilepsy & Behavior Elsevier [Commercial Publisher]., 135. https://doi.org/https://doi.org/10.1016/j.yebeh.2022.108874
Staša Lalatović, Maja Milovanović, Nadežda Krstić. Stigma and its association with health-related quality of life in adults with epilepsy | Elsevier Enhanced Reader. in Epilepsy & Behavior.135:null-108874. doi:https://doi.org/10.1016/j.yebeh.2022.108874 .
Staša Lalatović, Maja Milovanović, Nadežda Krstić, "Stigma and its association with health-related quality of life in adults with epilepsy | Elsevier Enhanced Reader" in Epilepsy & Behavior, 135, https://doi.org/https://doi.org/10.1016/j.yebeh.2022.108874 . .