Kvalitet života porodice gluve dece

Abstract

The family plays the most important role in the life of each individual, and especially in the life of a person who needs additional support due to developmental disabilities. In a situation when the child is deaf, the family faces painful and traumatic knowledge and numerous internal and external problems, and the family’s support will last a long time, usually permanently. The aim of the research was to assess the quality of life of the family of deaf children through the analysis of free time, communication, socio-economic status, as well as self-assessment of the quality of life. The research included families of deaf and hard of hearing children (N – 68) who made up our sample. The paper presents the results of the research in tables and graphs. The general conclusion is, although the sample is relatively small, that there is a fairly high unemployment rate of parents of deaf and hard of hearing children, mostly mothers. On the other hand, those who are employed spend most of their time at work. Interactions of parents of deaf children in society are limited to a narrow circle of friends, neighbors, and family, while wider social engagement is lacking. A small percentage of parents sometimes have the opportunity to do the things they want.

Porodica igra najvažniju ulogu u životu svakog pojedinca, a posebno u životu osobe kojoj je usled smetnji u razvoju ili invalidnosti potreb- na dodatna podrška. U situaciji kada je dete gluvo, porodica se suočava sa bolnim i traumatičnim saznanjima i brojnim unutrašnjim i spolj- nim problemima, a podrška porodice će trajati dugo, najčešće trajno. Cilj istraživanja bio je da se izvrši procena kvaliteta života porodice gluve dece kroz analizu slobodnog vremena, komunikacije, so- cioekonomskog statusa, kao i samoprocenu o kvalitetu života. Istraživanjem su bile obuhvaćene porodice gluve i nagluve dece (N – 68) koje su činile naš uzorak. U radu su tabelarno i grafički predstavljeni rezultati istraži- vanja. Opšti zaključak je, iako je uzorak relativno mali, da postoji dosta visok stepen nezaposlenosti roditelja gluve i nagluve dece i to najviše majki. Sa druge strane, oni koji su zaposleni najveći deo svog vremena provode na poslu. Interakcije roditelja gluve dece u društvu su ograničene na uži krug prijatelja, komšija i i porodice, dok širi društveni angažman izostaje. Mali procenat roditelja ponekad ima priliku da se bavi stvarima koje želi.