Evaluating implementation of family centered approach in families with children with cerebral palsy

Abstract

The aim of the research was to explore the quality of cooperation and support provided by institutions and professionals by determining the level of implementation of family-centered approach. The assessment was conducted from the perspective of parents of children with cerebral palsy, as one of the most difficult conditions whose consequences were also significantly reflected on family functioning. This cross-sectional study included 111 parents of children with cerebral palsy, aged 7-18 years. The Measure of Processes of Care - MPOC-20 was used. It was noted that the lowest extent of family-centered approach originated from an institution (p lt 0.001). The strengths of cooperation were reflected in the partnership of parents and professionals, which was characterized by equality, positive and individual approach of experts, as well as by mutual cooperation, compliance and teamwork. A need to improve the quality of provided services by taking into account the family-centered approach was indicated. Clear, open and objective sharing of complete information, both those related to the child and his condition and those that would encourage families to make use of support from the community, were recommended.

Cilj istraživanja je da se, utvrđivanjem stepena primene pristupa usmerenog na porodicu, ispita kvalitet saradnje i podrške pružene od strane ustanova i stručnjaka. Procena je vršena iz perspektive roditelja dece s cerebralnom paralizom, kao jednim od najtežih stanja čije se posledice značajno odražavaju i na porodično funkcionisanje. Studija preseka je obuhvatila 111 roditelja dece s cerebralnom paralizom, starosti 7-18 godina. Primenjena je skala Merenje procesa nege (Measure of Processes of Care - MPOC-20). Uočeno je da pristup usmeren na porodicu u najmanjem stepenu dolazi od ustanove (p lt 0,001). Jake strane saradnje se ogledaju u partnerskom odnosu roditelja i stručnjaka koji odlikuju ravnopravnost, pozitivan i individualan pristup, međusobna saradnja i timski rad. Ukazano je na potrebu da se poboljša kvalitet pruženih usluga uvažavajući pristup usmeren na porodicu. Preporučuje se jasno, otvoreno i objektivno deljenje potpunih informacija koje se tiču deteta i njegovog stanja, ohrabrivanje i upućivanje porodice na korišćenje podrške iz zajednice.