@conference{
author = "Stanimirović, Dragana and Mijatović, Luka and Korićanac, Irena",
year = "2017",
abstract = "Hronična tuga se odnosi na jedinstvenu emocionalnu reakciju koja se javlja
kada je gubitak kontinuirano prisutan u životu neke osobe. Ovaj pojam se
najpre vezivao za gubitke koji se tiču zdravstvenog stanja drugih. Poslednjih
godina se primenjuje i na doživljaje patnje u vezi sa sopstvenim zdravljem.
Roditelji dece sa smetnjama u razvoju se suočavaju sa snažnim osećanjem
bola nakon saznanja koja se tiču dijagnoze deteta. Bol ne prestaje usled
toga što se proces tugovanja ne završava. Jedinstvenost procesa hroničnog
tugovanja jeste upravo u tome što vremenom ne gubi na intenzitetu, već se
održava, a čak i pojačava tokom brojnih situacija (nedovoljno responzivno
osoblje, promena lekara, polazak deteta u školu, iskustva stigmatizacije
i dr.) koje mogu reaktivirati stanje tuge. Drugi aspekt jedinstvenosti ove
pojave ogleda se u postojanju perioda stabilnosti i adaptacije, tokom kojih
roditelji doživljavaju i pozitivne emocije u vezi sa stanjem svog deteta.
Ciklični karakter procesa hronične tuge često dovodi do kumulativnog efekta
tuge, naročito ako je povišena vulnerabilnost roditelja praćena nedostatkom
razumevanja i adekvatne podrške od strane užeg socijalnog okruženja
i zdravstvenog osoblja. Stanje hronične tuge se razlikuje od depresivnih i
anksioznih poremećaja i od izuzetne je važnosti da na adekvatan način
bude prepoznato, kako bi se smanjila mogućnost dalje patologizacije i
stigmatizacije porodice deteta sa smetnjama. Tretman ovog specifičnog
oblika tugovanja se pre svega odnosi na pomoć roditeljima da usvoje što
adekvatnije strategije prevladavanja stresa. Redefinisanje situacije i
prihvatanje neizvesnosti u pogledu budućnosti pružaju mogućnost da
se oslobode i iskoriste zdravi porodični kapaciteti. Pomeranjem fokusa
sa slabosti porodičnog sistema na njegove snage se, u skladu sa modelom
izazova, jačaju porodične rezilijence i utire put uspešnijem prevladavanju
narednih stresnih događaja., Research subject: Chronic sorrow refers to a specific emotional response that
occurs when the loss is continuously present in a person’s life. This term was
primarily referred to losses related to health conditions of others. In recent years,
it also applies to the experiences of suffering linked to one’s own health.
Method: Based on the review of theoretical and empirical researches, the main
questions of chronic sorrow in parents of disabled children are highlighted.
Results: Parents of children with disabilities are faced with a strong sense of pain
after getting the information concerning the child’s diagnosis. The pain does not
stop because the grieving process never reaches closure. The uniqueness of the
process of chronic sorrow lies in the fact that it does not lose its intensity over
time; rather, the intensity of grief maintains the same or even increases during
numerous situations (insufficiently responsive staff, changing doctors, starting
school, experiences of stigmatization, etc.) which can reactivate the state of
sorrow. Another aspect of the uniqueness of this phenomenon is reflected in the
existence of periods of stability and adaptation, during which the parents are
experiencing positive emotions about their child’s condition. The cyclic nature
of the process of chronic sorrow often leads to a cumulative effect of sadness,
especially when increased vulnerability of parents is accompanied by a lack of
understanding and adequate support from the narrower social environment and
health personnel.
Conclusion: Condition of chronic sorrow differs from depression and anxiety
disorders. In order to reduce the possibility of further stigmatization and
pathologisation of families of children with disabilities, it is very important
to adequately detect this state. The treatment of this specific form of grieving
primarily refers to helping parents to adopt appropriate coping strategies.
Redefining the situation and acceptance of uncertainty about the future provide
an opportunity for releasing and using healthy family capacities. Shifting the
focus from weaknesses of the family system to its strengths, according to the
Challenge model, empowers family resilience and enables more successful coping
with future stressful events.",
publisher = "University of Belgrade, Faculty of Special Education and Rehabilitation, Serbia /
Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju",
journal = "Zbornik radova, Proceedings- Eurlyaid
Conference 2017 „ Early Childhood Intervention:
For meeting sustainable
development goals of the
new millennium “, Beograd, Srbija, 06–08. 10.2017.",
title = "Hronična tuga kod roditelja dece sa smetnjama u razvoju, Chronic sorrow in parents of disabled children",
pages = "281-275",
url = "https://hdl.handle.net/21.15107/rcub_rfasper_2719"
}
