@article{
author = "Milićević, Milena",
year = "2015",
abstract = "U radu su prikazani rezultati pilot studije čiji je cilj bio da se ispitaju mogućnosti
primene Upitnika o kvalitetu života u vezi sa zdravljem (HRQOL) za
decu i mlade – KIDSCREEN-10 (Verzije za roditelje) u istraživačke svrhe u
populaciji osoba sa cerebralnom paralizom (CP) u Republici Srbiji. Ukupno
je bilo uključeno 112 roditelja dece i mladih starosti od osam do 18 godina.
Prvu grupu je činilo 47 roditelja dece i mladih sa CP, prosečnog uzrasta 13,06
godina (SD 2,75), a kontrolnu 65 roditelja dece i mladih tipičnog razvoja,
prosečnog uzrasta 12,11 godina (SD 2,65). Grupe su bile ujednačene prema
polu i uzrastu dece. Utvrđene vrednosti Kronbahovog α koeficijenta od 0,729
u grupi ispitanika sa CP, odnosno 0,752 u kontrolnoj grupi, ukazuju da je dobijena
prihvatljiva, ali niža interna konzistentnost u poređenju sa vrednostima
dobijenim u originalnom internacionalnom (α=0,78) i nacionalnom normativnom
uzorku (α=0,76). Man-Vitnijev U test je otkrio statistički značajnu
razliku stepena HRQOL između grupa (U=685,0, z=-4,978, p<0,001,
r=0,47). Tačnije, roditelji dece i mladih sa CP procenjuju kvalitet života
svoje dece kao niži (Mdn=41,71) u poređenju sa roditeljima dece i mladih
tipičnog razvoja (Mdn=52,65). Pored toga, u grupi roditelja dece i mladih
sa CP je uočena statistička značajnost razlike rezultata u odnosu na informanta
(χ2=8,969, df=2, p=0,011). Naknadna poređenja su pokazala da je
stepen HRQOL bio statistički značajno viši (U=7,500, z=-2,834, p=0,005)
ukoliko su majke vršile procenu (Mdn=44,96) u poređenju sa očevima
(Mdn=34,09), uz srednju jačinu uticaja razlike (r=0,48). KIDSCREEN-10 (Verzija za roditelje) ima dobre potencijale za primenu u istraživačke svrhe
u populaciji osoba sa CP. Potrebno je ponoviti istraživanje na većem uzorku,
obuhvatiti širi spektar sociodemografskih faktora, ispitati psihometrijske karakteristike,
kao i mogućnosti primene u kliničkoj praksi., This paper presents the results of a pilot study aimed to examine the
possibilities of application of the KIDSCREEN-10 Health Related Quality of
Life Questionnaire (HRQOL) for Children and Young People (Parent Version)
in research purposes in the population of persons with cerebral palsy (CP)
in the Republic of Serbia. A total of 112 parents of children and youth aged
from eight to 18 years were included. The first group consisted of 47 parents of
children and youth with CP, mean age of 13.06 years (SD 2.75). Control group
consisted of 65 parents of children and youth of typical development, mean
age of 12.11 years (SD 2.65). There were no statistical significances between
these groups according to both gender and age of children. Obtained values of
Cronbach’s alpha coefficient (0.729 in group of participants with CP and 0.752
in control group) indicate that internal consistency is acceptable, but slightly
lower when compared to the values obtained previously in both original
international (α=0.78) and national normative samples (α=0.76). Man-Whitney
U test revealed a statistically significant difference in HRQOL level between
two groups (U=685.0, z=-4.978, p<0.001, r=0.47). More specifically, group of
parents of children and youth with CP assessed quality of life of their children
as lower (Mdn=41.71) in comparison to parents of children and youth of typical
development (Mdn = 52.65). On the other hand, a statistically significant
difference of the results in relation to informant was noticed in the group of
parents of children and youth with CP (χ2=8.969, df=2, p=0.011). Subsequent
comparisons showed that HRQOL level was statistically significantly higher
(U=7.500, z=-2.834, p=0.005) when mothers were informants (Mdn=44.96)
compared with fathers (Mdn = 34.09), with a medium effect size value (r=0.48).
KIDSCREEN-10 (Parent Version) has a good potential for use in research
purposes in the population of persons with CP. It is necessary to repeat the
study on a larger sample, to include a wider range of socio-demographic factors,
to examine psychometric properties, and possibilities of implementation in
clinical practice.",
publisher = "Drustvo defektologa Srbije, Univerzitet u Beogradu – Fakultet za specijalnu edukaciju i rehabilitaciju (ICF)",
journal = "Beogradska defektološka škola",
title = "Evaluacija kvaliteta života dece i adolescenata sa cerebralnom paralizom u Republici Srbiji, Evaluation of the quality of life of children and Adolescents with cerebral palsy In the republic of Serbia",
pages = "22-9",
number = "1",
volume = "21",
url = "https://hdl.handle.net/21.15107/rcub_rfasper_3638"
}